rare disease

• Charitable medical air transportation and housing for rare disease patients
  www.Rare Disease Travel.org Charitable travel and housing arrangements through National Patient Travel Center and the National Association of Hospital Hospitality Houses.Box 18187 Ashville, NC 28814-0087…
• Disease Information from NORD, National Organization for Rare Disorders, Inc.
  Please Help US Raise Awareness Do you have a newsletter, community bulletin board, or other place where this ad might be placed to raise awareness of rare diseases and to encourage support for NORD’s programs…
• Disease Information from NORD, National Organization for Rare Disorders, Inc.
  Database Subscriptions Many libraries, schools, universities, and hospitals subscribe to NORD s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.The information in NORD’s…
• Europa - Public Health - Threats to health - non-communicable diseases - Rare…
  Rare diseases are now one of the priorities in the EU Public Health Programme 2003-2008 .According to the DG SANCO Work Plans for the implementation of the Public Health Programme, the two main lines of…
• European Organisation for Rare Diseases. Eurordis : Home Page
  However it is part of a wider effort by the Danish to provide social services adapted for rare diseases that are often chronic and disabling calling for long term adult care and support.Home Newsletter…
• genome.gov | Genetic and Rare Diseases Information Center
  Enter keyword Home | About NHGRI | Newsroom | Staff Genetic And Rare Diseases Information Center (GARD) Genetics and Genomics for Patients and the Public Genetic and Genomic Science About Genetic Disorders…
• Home - NORD Rare Disease Support Community - Inspire
  Discussion topics Getting a diagnosis How my disease has changed my life Financial issues Tips for caregivers My child and school Finding emotional support Finding a doctor Sibling issues My disease has…
• HON - List of Rare Diseases
  (browse: by Genetic Conditions -by Genes - by Chromosomes) Home About us Site map Search HONewsletter HON Contact http://www.hon.ch/HONselect/Rare Diseases//index.html Last modified: Wed Mar 12 2008 .List…
• Information Centre for Rare Diseases and Orphan Drugs :: News - Association of patients…
  [2008/3/25] People with rare diseases in Bulgaria ge…The main purpose of this event was to establish a national association of patients with renal cell carcinoma that will serve as a bridge between the…
• MedlinePlus: Rare Diseases
  Turns Spotlight on Medicine’s Most Puzzling Cases(05/19/2008, Health Day) NIH Launches Undiagnosed Diseases Program(05/19/2008, National Human Genome Research Institute) Treatment Orphan Products: Hope…
• National Laboratory Network - Rare Disease Testing
  Issues needing further exploration include how newly developed rare disease tests should be validated, and how analytic validity, clinical validity, and clinical utility should be established for rare…
• NIH Office of Rare Diseases (ORD)
  Safra Family Lodge at NIH Reports Publications (More…) Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006 Annual Report on the Rare Diseases Research…
• Open Directory - Health: Conditions and Diseases: Rare Disorders
  Information Centre for Rare Diseases and Orphan Drugs - Offers an Internet portal.Includes news, forums, rare disease and orphan drug information and registration forms Kindler Syndrome - An article and…
• Orphanet
  Provide adapted services for the rare disease community About Orphanet Quality charter Register your activity Languages : Français English Español Deutsch Italiano Rare diseases Information about a disease…
• Other Sources of Rare Disease/Orphan Product Information
  Office of Rare Diseases Office of Rare Diseases National Institutes of Health 6100 Executive Boulevard, 3B-01 Bethesda, Maryland 20892 7518 Telephone: (301) 402 4336 Fax: (301) 480 9655 ord@od.nih.gov…
• PHRMA
  A rare disease is defined as a condition affecting fewer than 200,000 people in the United States.Report: 2007: Orphan Drugs in Development for Rare Diseases (PDF) Informe: 2007: Medicamentos Hu rfanos…
• rare disease — Britannica Online Encyclopedia
  APA Style: rare disease.Retrieved August 08, 2008, from Encyclop dia Britannica Online: http://www.britannica.com/EBchecked/topic/491577/rare-disease rare disease Link to this article and share the full…
• Rare disease - Wikipedia, the free encyclopedia
  Symptoms of some rare diseases may appear at birth or in childhood, whereas others only appear once adulthood is reached.[edit] Characteristics Rare diseases are usually chronic.[citation needed] Those…
• Rare Disease Day, 29 February 2008
  Classic mode Mal voyant mode Home What is a rare disease.Why Rare Disease Day.Classic mode Mal voyant mode Home What is a rare disease.Why Rare Disease Day..
• Rare Diseases - Information About Rare Diseases
  Search Rare Diseases Home Health Rare Diseases Email Rare Diseases Diseases A-ZFinding Support Research Must Reads Rare Diseases: Basic Information Rare Diseases Support Groups Rare Diseases Research Studies…
• Rare Diseases
  There is no effective treatment for most of them, but suitable care can improve quality of life and increase life expectancy.  Rare diseases are a serious public health concern.In December 1999 the EU…
• Rare Diseases
  Mail (will be answered within 5-10 working days): The Genetic and Rare Diseases Information Center P.O.Med Line Plus: Rare Diseases.Search the Rare Disease Database - “the largest database of understandable…
• Rare Diseases and Related Terms
  Text Size: A A A About ORD | User Tips | ORD Search printer friendly version Home Rare Diseases Information Rare Diseases and Related Terms Rare Diseases and Related Terms Rare diseases terms are either…
• Rare Diseases Clinical Research Network
  June 6-8, 2008 Mayo Clinic, Rochester, Minnesota Information: www.vasculitisfoundation.org/news/2007/12/28/8th-international-vasculitis-symposium The Rare Diseases Clinical Research Network (RDCRN) was…
• Rare Disease Search Engine
  The sites incorporated into the search include: endo-society.org, rarediseases.org, rarediseases.about.com, ord.aspensys.com, rarediseases.info.nih.gov, rarediseasesnetwork.epi.usf.edu, webmd.com, fda.gov,…
• Rare Diseases Resource Page
  National Institute of Arthritis and Musculoskeletal and Skin Diseases Patient Research Registries http://www.niams.nih.gov/Funding/Funded Research/registries.asp The NIAMS patient registries are databases…
• Rare Diseases Task Force
  It currently has 36 members comprising current and former project leaders of European research projects related to rare diseases, member state experts and representatives from relevant international…
• Rare Disease Therapeutics
  America’s First Exclusively Orphan Drug Company Rare Disease Therapeutics, Inc* is an established biopharmaceutical company focused on development, registration, and distribution of orphan products in…
• Rare Disease | NDRI: National Disease Research Interchange
  Alliance with Voluntary Health Organizations In 2006, NDRI launched the National Rare Disease Biospecimen Alliance (NRDBA) of Voluntary Health Organizations (VHOs) that advocate for research into specific…
• Welcome to CORD - Canadian Organization for Rare Disorders
  “1 in 12 Canadians either has or is a carrier of a rare disease or disorder.Welcome to CORD For Immediate Release: May 7, 2008 Passage of MP Don Bell’s Motion Gives Hope to Canadians with Rare Disorders…